Sundays with Gage – Autism One

A few weeks ago I had the good fortune to attend the Autism One conference in Chicago.  I was there for 3 1/2 days and came back with a renewed zest to heal Gage.  This conference is for people who reject the notion that autism is a strictly psychological condition and treat it as a medical one.  I’ve been on board with this approach for a year and a half and was ready for a crash course.  I can’t cover everything I learned or already knew (by the way, this is why there are so few autism posts on here – I start writing and the post becomes unmanageable) but using Oprah’s book as a guide, I’ll just tell you the things I know for sure.

1)Kids on the autism spectrum are being recovered.  I spent most of Wednesday listening to mothers who healed their kids and they are no longer on the spectrum.  Do you want to know what the secret is?  They all started by healing the gut.  The brain issues that get a kid diagnosed with autism start because the gut is compromised and toxins spread to the brain.  All of these mothers started with a casein/dairy free diet, no corn, soy or GMOS, and little sugar.  With this new diet they also added supplements to heal the stomach and for some this is all it takes to be on the road to recovery. The trick is to find the correct supplements and diet that works for your kid.  Because every kid is different and not every one is recovered.  A note about the diet – once the child’s gut is healed some of these foods may be added back in.

2)Traditional doctors are of very little help.  Most of the doctors who are DAN or MAPS doctors (docs with biomedical training for kids on the spectrum) now were traditional MDs who had a child with autism that set them off on this path of what kids with autism have in common medically.  It’s quite a bit actually.  Gage’s pediatrician has been of no help whatsoever, you will read more of her when I talk about vaccines.  If a parent wants a recovered kid most of the work is on them.

3)Leaky gut is not something traditional doctors believe exist. And because they don’t believe it, they don’t see how things like toxins, medicines, vaccines can contribute to autism.  I did not say cause I said contribute.  Without the leaky gut these things could be eliminated from your body without a problem.  So, is the leaky gut to blame?  I won’t get into the complexities of the leaky guy here but I’d be happy to answer any questions if you have them.

4)Some of the talks were above my pay grade.  I went to one about Vitamin B numbers being off with kids on the spectrum and I was ten minutes late.  Those ten minutes must have been very important because I sat there for 5 minutes and had NO IDEA what he was talking about.

5)I’ve not talked about vaccines on this blog because it is a lightning rod for vile, disrespectful comments and if that happens I’ll turn the comments off.  Feel free to email me if you want to talk about it.  Okay, there were lots of doctors talking about vaccines at this conference and I listened to two panels.  They pretty much expanded on my own views after the past year and a half of research.  Let me tell you the one thing I learned.  Nine months after Gage ended up on a ventilator and a dairy allergy was put on his medical record our pediatrician gave him a vaccine with casein in it without consulting me.  This ushered in another round of severe head banging and it is also when he was diagnosed with PDD-Nos. Did his doctor know that the vaccine had dairy in it?  I don’t know.  As a parent it is your responsibility to do your own research. There are kids who should not receive vaccines at all and there are kids who shouldn’t receive certain vaccines.

6)Medical testing is vitally important and insurance rarely covers it.  On the same note, traditional therapies are not properly covered either.  Gage gets 20 ‘free’ OT and Speech sessions a  year.  These ‘free’ session cost me $60 co-pay every time.  Thanks insurance, you’re a real help.

7)There’s more that I’m forgetting right now, but I’ve bored myself already!  If you are interested in checking out any of the sessions (maybe I’ll recommend some next time), here’s a link to all of the videos .

I’ve been asked a few times over the years (even just yesterday) what a parent should do if their kid is diagnosed and I always say to start with a gluten free/casein free diet.  It is not easy and to do it correctly the gluten has to be out for at least nine months, but it is the best place to start.