I had breakfast with a mom whose daughter has had group sessions with Gage every Saturday morning for over a year. We lead lives on opposite ends of town and have different daily struggles (she has 4 daughters!) but once every month or so we try to schedule a meet up while they are in group to vent, question, learn and feel a kinship to someone who knows what in the hell we are going through. Having her to talk to is a gift and I always feel like my steps are lighter and my fighter mama mode is fully charged after we’ve gotten together and I hope I provide the same for her.
Our kids are a puzzle and sometime we try the same strategies and sometimes we don’t. Going gluten-free didn’t help her daughter at all while it helps Gage immeasurably (I ALWAYS know when he has had contact with gluten). We sort of tried the B12 shots at the beginning of the year and she is planning to start them soon. We both are having success finally potty training our kids and have the same stress over where to send our kids to school, how to run our home programs, and how best to utilize our time and money. This morning she mentioned something that people who don’t have kids on the spectrum don’t realize. We are in constant survival coping mode. She has to do things for her youngest daughter that she never even considered with the other three. It is exhausting mentally and physically. It’s only when we get together and talk that we can laugh a little and acknowledge that it is a struggle. Sometimes it’s overwhelming and we are both ready to send them to school on Monday (yay!).
She listened as I told her that we had taken Gage to the Cleveland Clinic yesterday to test for Cystic Fibrosis. Without going into all the details as to why we tested it was exciting that after I got Gage home from group and checked my email I saw that the test came back negative! How fulfilling it was to be able to send her a message that I have one less thing to worry about today. It was a sweat test, non-invasive and took about an hour. Here’s Gage with his Daddy during the test watching Looney Tunes. The specialist told us to expect him to cry but this is not Gage’s first scary test so I knew he’d be fine. This kid is a trooper and even if sometimes it is a struggle I wouldn’t change a thing about him.