Sundays With Gage – Fly

gageWhat if I fall?

Oh but my darling

What if you fly?

This week The Center for Life Skills posted this picture on their Facebook page. The butterfly wings are made up of paper plates that the kids decorated.  When Gage was diagnosed with PDD-nos when he was two the very first therapy he did was here with the occupational therapist he still sees.  It’s such a warm and inviting place and we have made lasting friendships with other families in the waiting room.  Now that Gage is seven he has less interventions, but the needs are changing and so must my strategy.

I was happy to see this when they posted it and I shared in on Facebook and went about my morning.  I came back a few hours later and read the comments and then looked at the picture again, read the words again, and started to cry.  Not heaving sobs, but tears and the question, “how do I make you fly?”  Every parent asks this at some point, I’m sure, but when your kid has special needs it makes the question more challenging because the answers may not easily be found.  Yesterday at the grocery store I frequent, one of the ladies asked me about Gage and we started talking about her son.  It turns out that he has sensory issues and sees an OT and she had no idea that he might be eligible for money from the state for private education.  She asked me as I was leaving, “How do you know all this stuff?” I wanted to hug her because that is where the fear lies.  What if there is something that can make a difference that I haven’t discovered yet?  So, I keep reading, and scheduling and trying new things, but in truth, it’s the other mothers that have shown me the way.  So the most important thing I do is listen and ask an annoying amount of questions and hope that is enough.

Gage is doing great, but I want him to soar.

12 thoughts on “Sundays With Gage – Fly

  1. Kay says:

    I love that picture. So very special and symbolic! And, Stacy, as others have helped you, you will will in turn help. It’s what we do, right? Life throws these things at us and then we deal and support others that aren’t as far along the path as we are. I didn’t have the same challenges that you’ve had, but I’ve had my own. Take care, friend! Hug your boy for me!

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